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Gretchen Drown's avatar

Thank you for sharing you hard-earned and evolving wisdom! As you have keenly observed, for some people, brain retaining will be their way out of long covid. I have (anecdotally) witnessed a similar pattern with other LC treatment protocols, generally: works for some, not for others which. LC is a very individual experience, and recognizing that characteristic helps us understand that different solutions will exist for different individuals. I keep returning to the idea that for many pwLC, brain retraining alone may not be the way out, yet perhaps we cannot fully recover without addressing these subconscious neural pathways.

For myself, I see that brain-retraining techniques are a crucial support in my ongoing recovery, one of several I employ to give my body the best chance of healing. Fear triggers a nervous system response that effects my immune system, endocrine system, digestion, etc. To support my autonomic nervous system and get it back in sync, I use a variety somatic experience and yoga nidra meditations, as well as reiki, to increase my awareness and acknowledgment of sensation without fear or judgement. My health keeps improving, I am building quality of life, and I am much more respectful of my body and it’s integrated needs.

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James's avatar

Your hypothesis makes total sense. For some people brain retraining alone does seem to work to resolve all symptoms.

For most, myself included, ending up with a dysregulated nervous system forces us to go back and fix not only the neural pathways that have gotten stuck since becoming unwell, but to do the deep work that builds resilience into our systems so we’re not susceptible to the personality traits re-emerging and living a life with unhealthy processing of emotions that meant we were fertile ground for illness.

It’s like any emotions correlate with other similar emotions from the past so you need process them one by one, peeling back each layer. No emotion is bad, simply that if left unprocessed, it will get stuck and change us and our behaviours and personality which causes disharmony in our lives in some way in the future. It all starts before we can even remember so often we’re put on this path before any we have any level of agency so it’s certainly not in any way our “fault”.

As absolutely horrific as the illness is to endure it can be seen as an opportunity to listen to the wisdom of our body and emerge as a better version of ourselves redirecting us back onto the path we were meant to be on.

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